Other Regional Support Groups
Napa Valley/Sonoma Area
The Myeloma Stompers, founded in February, 2006, meets on the second Friday of each month at the Town of Windsor Senior Center located at 9231 Foxwood Dr., Windsor, CA. Meetings are from 12:30 pm to 2:00 pm. For more information, please contact Bob Ensten at 707-836-0913 or by E-mail at myelomastompers@comcast.net. Visit the group website at http://napavalley.support.myeloma.org
Sacramento
The Sacramento Area Multiple Myeloma Support Group meets on the 1st Saturday of each month from 10:00 AM – 12:00 PM at the Physicians Medical Plaza, Mercy San Juan Hospital Campus, 6555 Coyle Ave., Carmichael, CA 95608. The meeting is in the Lukens Auditorium. For more information, please contact Bill Milliken at sacmmsupport@imfsupport.org. Visit the group website at sacramento.support.myeloma.org.
Other Resources
Bay Area Hospitals with MM Expertise
Stanford University: http://cancer.stanfordhospital.com/cancerTypes/multipleMyeloma/default
Sutter Health/Alta Bates Berkeley/Oakland: http://www.cancer.sutterhealth.org/information/index.html
Multiple Myeloma Research Foundation (MMRF) sites
MMRF Home page – www.themmrf.org (join to receive Smart Brief newsletter free via email)
MMRF Myeloma Treatment –www.themmrf.org/multiple-myeloma/multiple-myeloma-treatment-options/
MMRF Clinical Trials – https://themmrf.org/2019/05/clinical-trials/, (866) 603-MMCT(6628)
MMRF Phone - (203) 229-0464
MMRF Patient Support Center - (866) 603-6628
International Myeloma Foundation (IMF) sites
IMF Home Page – www.myeloma.org (pubs, seminars, clinical trials, advocacy, and more)
IMF Home Page (En Espanol) - www.myeloma.org (Spanish version)
IMF Infoline – 800-452-CURE (2873)
Smart Patients (an online support group): https://www.smartpatients.com/partners/imf
Myeloma Manager: http://manager.myeloma.org (free software to understand, manage, and graph your labs)
Myeloma Manager Webinar: http://myeloma.org/Main.action?source=link&tabId=22&menuId=385&linkId=3631&parentTabId=0&parentLinkId=0&parentMenuItemId=385&parentNuggetId=0&parentKeywordId=0
Leukemia and Lymphoma Society (LLS) site
LLS Home Page – www.lls.org (pubs, first connection, support groups, co-pay financial help, and more)
Supports all blood cancers Leukemia, Lymphoma, and Myeloma
LLS Information Resource Center (800) 955-4572
National Cancer Institute (NCI) sites
NCI Home page – www.cancer.gov
Locating Clinical Trials: www.clinicaltrials.gov
NCI publications – http://www.cancer.gov/publications (free, downloadable)
NCI Drug Dictionary – http://www.cancer.gov/drugdictionary (e.g. enter Thalidomide)
NCI Thesaurus – https://ncit.nci.nih.gov/ncitbrowser/
NCI Physician Data Query (PDQ) – http://www.cancer.gov/publications/pdq
NCI Treatments –http://www.cancer.gov/types/myeloma/patient/myeloma-treatment-pdq
NCI Find a Clinical Trial - http://www.cancer.gov/about-cancer/treatment/clinical-trials/search
NCI Help Line – 1-800-4-CANCER (226237). This line is answered by people knowledgeable about cancer
Cancer-Care
www.cancercare.org offers free support, information, financial assistance, support groups, free telephone/video conferences on latest advances.
Door to Door MM Transportation System offers up to $600/yr
Help line at 800-813-4673
American Cancer Society
www.cancer.org offers news, treatment information, etc.
Help line at 800-227-2345
National Marrow Donor Program (NMDP)
www.marrow.org (locates donors for allogeneic transplants)
Other MM Sites
Myeloma Beacon www.myelomabeacon.com
Managing Myeloma www.managingmyeloma.com
Clinical Care Options www.clinicaloptions.com
Myeloma Crowd www.myelomacrowd.org (includes excellent MM Interviews & listing of MM docs)
Financial RESOURCES
See IMF site: Drug Reimbursement Information and Assistance
Other MM and Relevant Sites
Free light chain test www.thebindingsite.com
Autologous transplant information written by MM survivor diagnosed 1991 www.BMTresources.org
Understanding Your Lab Tests: www.labtestsonline.org/understanding/index.html
Patient Power http://www.patientpower.info/
Patient Empowerment Network http://www.powerfulpatients.org/
Cancer cafe
Judith C. Dambowic: A Journey from Diagnosis Through Stem Cell Transplant Solo Performance on Youtube
INSURANCE, MEDICARE, LEGAL
Finding Insurance Plans by State including Medicare https://www.affordablehealthinsurance.com/
Practical and Legal Issues after a Cancer Diagnosis https://triagecancer.org/
mental health Sites
Warning Signs of Depression in a Family Member www.rehabsolution.org
Indoor Activities for Seniors in Isolation www.harborlifesettlements.com
Effective Stress Management Activities for Seniors www.bluemoonseniorcounseling.com
How to Find a Social Worker www.helpstartshere.org